First of all, I cannot thank you all enough for all of your support in the last couple weeks. I am truly overwhelmed by the love and kindness. I had been optimistic and prayed with every morsel in my body for happy outcome and a better update...
Unfortunately this week went from bad to worse... earlier in the week we found out through microarray testing that our baby boy had a rare chromosomal microdeletion... while that could mean a broad spectrum of challenges we didn't consider it earth shattering until having an ultrasound shortly after. The ultrasound revealed our baby was suffering from the worst case scenario and most likely had an even more rare condition called TAR. Sadly we found out that our baby boy was not developing properly and not going to make it.. Even though we knew the Cystic Hygroma diagnosis was bleak and could lead to this, we were still shocked that all this was happening to us and our little boy... it all feels like a nightmare..
Everything happened fast, and I guess for that I'm grateful... I had a D&C procedure on Friday and am on the mend, but we are heartbroken and completely devastated to loose our little boy and the image of being a family of 5 in January. We are also doing a great deal of testing to figure out if one or both of us is a carrier of this chromosomal abnormality...yikes... the world of genetics is way more complex and something I never expected to have to understand..
We are sad, and feeling a little lost, but we are putting one foot in front of the other, picking up the pieces and hanging in there. I had said to my husband when we got our first piece of bad news that if something happened to our little boy I might loose it and go over the edge... But I didn't.. I will be ok, and I think we are all stronger that we imagine.
Right now we are grateful beyond words for Jack & Calvin. We feel blessed that they are happy, healthy, and wild little boys that keep us guessing, smiling, and chasing them everyday.
Thank you all again for your support, I truly appreciate it!
I'm Rebecca, a Maine mom of three energetic young boys and wife of a lobsterman, living in my favorite place, the coast of Maine. You'll find me here talking about my parenting journey, mom style, recipes, running and exercise, travel, stories from our life in Maine and so much more! Most days I'm just figuring it out as I go - Thanks so much for stopping by!